Washington Days 2026

Join us at the National Bleeding Disorders Foundation's largest annual advocacy event!

Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We are looking forward to meeting in person with legislators and staff, along with hundreds of volunteer advocates across the United States, to discuss issues important to our community.

Given the constantly changing landscape, NBDF is still working to determine the specific issues we will be discussing at Washington Days 2026. Issues that continue to be a top priority for NBDF include:

• Policies that protect and strengthen access to affordable, high-quality health insurance. This is now more important than ever with Medicaid and Marketplace plans undergoing significant changes.
• Improving access to care for all members of the bleeding disorders community, including women and girls. This includes protecting and strengthening the federal bleeding disorders programs, which provide vital resources for our community.
• Fighting deceptive insurance practices. NBDF continues to champion efforts to fight against practices such as copay accumulator adjustor programs, copay maximizers, alternative funding programs, and narrow formularies – all of which make it harder for individuals living with bleeding disorders to access needed medication.

Check back in 2026 for more information on the issues NBDF will discuss at Washington Days!

Please continue reading this page for registration, meals, hotel accommodations, airline discounts, and mobile app information to better acquaint yourself with and prepare for NBDF's most significant advocacy event.

Dates

Venue

Snapshots from last year's Washington Days

How to Attend and Advocate - extended registration deadline!

Washington Days 2026 will be an entirely in-person event, and registration is required to attend. We anticipate Washington Days will be a full-capacity event, and we will accept registrations only until Friday, January 23, 2026, subject to available capacity. There will be no registration on-site.

To help make this gathering possible, we ask that each adult contribute a nominal registration fee of $25.00. This will help offset the costs of registration and meals. If you can no longer attend Washington Days, please email Johanna Ong at jong@bleeding.org by Monday, February 16, 2026. There will be no refunds for registrations cancelled after February 16. 

Meals at Washington Days

• Wednesday, March 4 - Buffet Dinner
• Thursday, March 5
  • Breakfast pastries, coffee, tea, and juice
  • Buffet Dinner
• Friday, March 6 - Breakfast pastries, coffee, tea, and juice

Hotel Accommodations - Newly Renovated, 30% Discount from Published Rates!

The Hyatt Regency Washington at Capitol Hill recently completed renovations to its guest rooms. NBDF is pleased to offer a discounted hotel rate, including a waived destination fee.

Mobile App

• view meeting schedules and receive notifications
• take notes about meetings
• reference talking points
• view leave behinds and email them to congressional staff
• research legislators' bios, voting records, news, social media pages, and more
• research bills of interest (status, current sponsors and co-sponsors, summary)
• send thank you notes to congressional staff

*Mobile data rates may apply. By February 2026, registered attendees will receive an email with instructions on downloading and accessing the app.

NBDF's Infectious Disease Duty of Care

NBDF is committed to creating a safe and healthy environment for all our community members: consumers, chapters, providers, presenters, exhibitors, and staff. However, while vaccinations, negative COVID tests, observance of safety protocols, and exercise of personal discipline may reduce risk, an inherent risk of exposure to infectious disease does remain in any public place where people are present. Additional information can be found on NBDF’s Infectious Disease Duty of Care.