What's New and Frequently Asked Questions

 

 

For an additional $25.00 donation or more, an attendee will receive (1) official Washington Days sweatshirt. This option is available when completing registration for Washington Days. The adult sweatshirt is heather blue and available in sizes from small to 3XL, while the youth sweatshirt is a deep royal blue and available in sizes extra small to extra large. Attendees who opted for this will receive the sweatshirts at Washington Days during name badge pick-up. No extra sweatshirts will be available on-site.
 
 
A nominal fee of $25 per adult (18 years old and above) to help offset the costs of registration and meals. If you can no longer attend Washington Days, please email Johanna Ong at jong@bleeding.org by Monday, February 16, 2026. There will be no refunds for registrations cancelled after February 16. 
 
Yes. The registration deadline is Friday, January 23, 2026, at 11:59 PM EST. Please coordinate with your local chapter to register for Washington Days.
 
No. There will be no registration on-site. We anticipate that Washington Days will be a full-capacity event. Pre-registration is required to attend and to join all appointments with your representatives.
 
No. Washington Days 2026 is an entirely in-person event.
 
No. There will be no recording of sessions.
 
NBDF is committed to creating a safe and healthy environment for all members of our community: consumers, chapters, providers, presenters, industry partners, and staff. However, while vaccinations, negative COVID tests, adherence to safety protocols, and personal discipline may reduce risk, an inherent risk of exposure to infectious disease remains in any public place where people are present. For more details, click here.
 
No travel expenses are covered by NBDF.
 
However, we have partnered with Delta, United, and Southwest Airlines to offer discounts and/or additional rewards points on flights to Washington, D.C., via DCA, IAD, or BWI. Click here for more information on how to book discounted airfare.
 
NBDF only covers one (1) hotel room for two (2) nights per chapter. A private registration link has been sent to the chapters' Executive Directors for the NBDF-covered hotel accommodations.
 
For general attendees and industry partners, NBDF has secured a room block at the Hyatt Regency Washington on Capitol Hill at a discounted nightly rate of $299++, and a waived destination fee. Please use the link in your registration confirmation email to make your reservations. Note that if you book a room using the reservations link, you are responsible for paying for the room and taxes for the duration of your hotel stay. A credit card is required to guarantee the room reservation. There is no charge or hold placed on the card until check-in/out, or in the event of no-show or not cancelling within the designated cancellation period.
 
Note that the hotel only allows a maximum of 4 people in a room. An additional rollaway bed (with a nightly additional fee) can be requested for 1 King bedrooms only. 
 
The Hyatt Regency Washington on Capitol Hill offers valet parking only. The following parking fees apply, subject to tax:
  • 0-2 hours: $28.00
  • 2-12 hours: $40.00
  • 12-24 hours: $57.00
  • Oversized vehicle 10-24 hours: $60.00
  • Overnight $57.00

It is my first time attending Washington Days. How do I prepare for it?

We are glad you will be attending Washington Days! A training webinar will be on Friday, February 20, from 1:00 PM to 2:00 PM (EST). Details and a Zoom link will be sent via email. Returning attendees' training webinar is also scheduled for the same day from 2:30 PM to 3:00 PM (EST).
 
General attendees must arrive on Wednesday, March 4, in time for the training at 5:00 PM at the Hyatt Regency Washington on Capitol Hill. Separate information will be sent for chapter and industry representatives for the SBAC Luncheon and Industry Stakeholders' Meeting.
 
You must complete the registration for Washington Days and provide your correct home address to ensure we contact the appropriate representation. You must also include your zip code + 4-digit extension (example: 12345-6789) so we can correctly identify your congressional district. To look up your 4-digit extension code, click here.
 
Appointments are scheduled on Thursday, March 5. You will receive your meeting schedules the week prior to Washington Days.
 

To maintain a respectful, professional, and inclusive environment, we ask that attendees avoid wearing clothing with political messages during Washington Days. Thank you for helping us keep the focus on our shared advocacy goals. Please dress appropriately. Photos will be taken throughout the meeting days and posted on NBDF's social media platforms. Bring a sweater or a light jacket, as hotel meeting rooms can get cold at times.

  • On training days, March 4 & 6 - casual
  • On March 5 - business casual (no sweatshirts/hoodies, no caps/beanies)
Can my child also attend Washington Days and meet with our representative?
Children are welcome to attend Washington Days. They need to be registered as a General Attendee. If you are completing the registration on their behalf, please enter their information. We will gladly provide a school absence excuse letter, please email Mariana Peña at mpena@bleeding.org.
 
No. NBDF's Washington Days is designed for individuals affected by bleeding disorders and their families. Though we value our relationship with those in the industry and invite them to attend the training portions of this program (Wednesday and Thursday evenings and Friday morning), we are reserving the day on the Hill, Thursday, March 5, 2026, for consumers and their families only. There will be an advocacy stakeholder meeting with industry partners on Wednesday, March 4, at the hotel.
 
No, there is no transportation from the hotel to the Hill. Washington Days hotel is located on Capitol Hill. The walk from the hotel to the Hill is approximately 15-20 minutes, depending on where your appointment is held. If you have any mobility restrictions, please contact Mariana Peña at mpena@bleeding.org.
 
 
NBDF will provide the following meals at the hotel:
  • Wednesday, March 4 – Buffet Dinner 
  • Thursday, March 5
    • Breakfast pastries, coffee, tea, and juice
    • Buffet Dinner
  • Friday, March 6 – Breakfast pastries, coffee, tea, and juice
A mobile app* will be made available to all advocates that will enable them to:
  • view meeting schedules and receive notifications
  • take notes about meetings
  • reference talking points
  • view leave behinds and email them to congressional staff
  • research legislators' bios, voting records, news, social media pages, and more
  • research bills of interest (status, current sponsors and co-sponsors, summary)
  • send thank you notes to congressional staff

*Mobile data rates may apply. Registered attendees will receive an email with instructions on downloading and accessing the app by February 2026.

Yes, NBDF's Medical and Scientific Advisory Council (MASAC) Meeting will be held on Friday, March 6 from 8:00AM to 5:00PM. Please contact Mariana Peña at mpena@bleeding.org for more information.
 
  • March 3-5, 2027
  • March 8-10, 2028
  • February 28-March 2, 2029
 
 

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